小测验:您的“以患者为中心IQ”是多少?

患者们提到的参加临床研究的障碍有哪些?他们愿意旅行多远的距离去参加一项研究?如果知道自己的医生了解某项研究,他们参加该研究的意愿会增加多少?“以患者为中心”测验

我们向135,000名患者调查了上述问题以及其它一些问题,他们选择加入LabCorp数据库,以获得关于Covance临床研究的更多信息。 超过2,500人回答了我们的问卷调查,为我们的团队提供了独特的深度观察,从而更好地理解患者的想法,设计出更有效的招募策略。

接下来,为了看一看药物研发行业的同事们是否能推测出参与者在这次调查中给出的汇总答案,我们发布一项简短的测验。2017年药物信息协会年度会议(DIA)的任何参与者都可光临我们的展位,参加这项测验,看看自己表现如何。

While the survey sent to people who opted in through LabCorp covered a wide range of topics, we focused on five questions in our quiz for industry partners. With a multiple-choice format, they were asked:

  1. What is the MOST significant issue keeping patients from participating in clinical studies?
  2. On average, what is the MAXIMUM distance a potential participant would be willing to travel in order to participate in a study?
  3. What percentage of potential study participants proactively researched and/or discussed a clinical study with a professional, but did not participate?
  4. What percentage of potential study participants are MUCH MORE WILLING to participate knowing that their physician is aware of the study?
  5. What percentage of potential study participants are VERY WILLING to wear a mobile device (Fitbit®, watch/wearable) outside of standard study visits to support the study experience?

So, how well did our industry peers do? Drum roll please … Of the nearly 100 booth visitors that took our survey, most participants answered one or two correctly out of the five questions. For me, it was not really about the score itself but rather the underlying message that was revealed: our industry needs to elevate the importance of patient centricity. Are we truly embedding the viewpoint of the patient as we design our protocols? Are we considering how we are going to get our desired study endpoints and what we can do for the patient to make the overall journey easier?

As a follow-up to the quiz, there was significant discussion about how to gain a better understanding of patient views related to clinical study participation and the downstream impact for everyone involved. I heard one of my colleagues tell the story of how they supported a study partner by using patient insights to help rally a group of investigators that was otherwise extremely hesitant to sign up for a rare disease trial. While that study is still in progress, it provided firsthand evidence of how these data can have a direct influence on optimizing a study.

I think that while we would all agree that putting the patient at the center of what we do can be a daunting and complex undertaking, it is no longer a "nice to have" feature, but a must for the industry as a whole. Our quickly changing and ever-shrinking world has provided an opportunity for pharmaceutical companies to put the patient at the center of all drug development efforts and I, for one, am excited to see Covance be a driving force in this effort.

Would you like test out your patient centricity IQ? Take the same five-question, multiple-choice quiz that was given to attendees at DIA 2017 and see how well you align with the thinking of potential study participants.